I have long advocated for our local friend Pat Tinsley to gain access to this rare drug to treat his Amyloidosis. As recently as Tuesday I brought the Senate’s attention to this drug and others in the context of the Orphan Drugs bill.
I am delighted to announce that the HSE has approved Patisiran for use and the rollout of this vital drug is imminent in Ireland.
I fundamentally believe that everyone has an equal right to healthcare, and that the rarity of your condition should not be a determining factor in your treatment
This is great news for Pat and for others who suffer with Amyloidosis. I am delighted with this outcome, but I will continue to fight for the passage of the Orphan Drugs bill to ensure that everyone can access the drugs they need